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DaveInVA

DaveInVA Avatar

Location: In a hovel in effluent Damnville, VA
Gender: Male

Posted: Jul 30, 2016 - 7:11am

miamizsun wrote:

dave i'm sorry to hear this

if you pm me or post the details i'd be happy to do some research for you

and would you be open to something cutting edge or experimental?

peace

Some details:
This started about 20 years ago when I had an arterial spasm likely caused by the job stress I was under at the time. The Doc called the arterial spasm a small stroke. It was like crimping a garden hose and releasing it resulting in a momentary high bp in the small vessels feeding the retinas in my eyes. This blew out hundreds of them causing leaks. The vision damage was immediately noticeable in both eyes at the same time. These vessels are to small for red corpuscles to fit through so scabs can't form to seal them. The plasma leaks contain high protein which over time causes the layers of the retina to delaminate and separate causing permanent vision problems and making the eyes very fragile. Having the cataract surgery seems to have disturbed things enough to cause multiple delaminations to occur in both eyes. This would have happened sooner or later anyways but it might have been years later. The Doc held off doing the cataract surgery until after a full year of no noticeable activity occurred hoping it would be stable enough to take the abuse of the surgery.
I'd be open to about anything. Usually they use laser cauterization to seal the leaks before more damage happens but every time they fire the laser it causes small dead spots so its only practical if you only have a few leaks and not hundreds.

miamizsun

miamizsun Avatar

Location: (3261.3 Miles SE of RP)
Gender: Male

Posted: Jul 30, 2016 - 6:39am
DaveInVA wrote: An Update to my last post here. dave i'm sorry to hear this if you pm me or post the details i'd be happy to do some research for you and would you be open to something cutting edge or experimental? peace

DaveInVA

DaveInVA Avatar

Location: In a hovel in effluent Damnville, VA
Gender: Male

Posted: Jul 30, 2016 - 6:26am

kurtster wrote:

The cataracts uncorrected would have had the same net effect. Diabetes is the one disease not of the eye that has the most profound effect on the eye. At least you don't have that to worry about. There are some eye vitamins that might help slow things down, but surely won't hurt.

Time for vigorous eye protection from the sun with polaroid lenses a must for bright outdoor days, even if its the fit over type. I would recommend brown for the blue blocking properties and the higher contrast they offer.

These may be of help in other occasions such as indoors or cloudy days. And they make a wide variety of decent fit overs as they are called. You should be able to find them at most optical shops. You do need to try them on to make sure they fit properly. Ask for them by name.

Cocoons

If they help. you can get your regular clear lenses tinted that color for full time use. There are actually two standard tint colors for this purpose. Do check with your doctor before the vitamins first though.

HTH

My vision lasted longer than I was originally told. When this happened I was living in Petersburg and was seeing a eye doc from the University of Richmond. He did a Intravenous Fluorescein with his class watching and he told them what they were seeing was not typical and is the worst case you will ever see. He then told me I'd be legally blind by the time I was 55. So its just taking longer than he thought.

kurtster

kurtster Avatar

Location: drifting
Gender: Male

Posted: Jul 29, 2016 - 6:36pm

DaveInVA wrote:

Its all I can do. I can't make out detail in peoples faces anymore in normal lighting.

NoEnzLefttoSplit

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Gender:

Posted: Jul 29, 2016 - 2:47pm

DaveInVA wrote:

An Update to my last post here.

I saw a specialist eye doc from Duke University yesterday. My left eye had also started failing in the past 2 weeks. This was the soonest he could see me as he has been on vacation for a month.
Good news the "cyst" is gone. It was a bubble in the retina caused by fluid getting under it and pushing it up and it resolved on its own. Was likely caused by the abuse the eye got during cataract surgery as the Doc had a hard time centering the new lens. These bubbles happen about 15% of the time after cataract surgery and usually self resolve. The bad news is my vision got even worse instead of better and both eyes are now as bad as before the cataract surgery, So he did a dye scan. Turns out my vision is failing because I have actual dead spots in my eyes. The right eye its in the center of vision, a very large portion of it. My left eye its in the upper left vision mostly. This was likely caused when the cataract surgery disturbed "fragile" areas originally caused by a stroke I had about 20 years ago. The worse news is the scans show many other areas decaying. The even worse news it there is nothing they can do about it except hope it takes a long time for the other areas to die out. The Doc said in his 38 years in this business he has never seen damage as bad as what I have. This is similar damage to what some diabetics get except it rarely happens in both eyes or to this extent. He said there are "hundreds" of dying areas in both eyes. I am not diabetic (yet anyways) and I originally developed eye problems in both eyes the same day 20 years ago after a small stroke. Before the cataract surgery this same Doc thought this had stabilized and after a further year of no more activity he ok'd the cataract surgery. He now says this would have happened anyways eventually even without the cataract surgery but it might have taken a lot longer to happen. I guess my eyes were just to fragile from the previous damage. But I was already at a point where my vision could have kept me from renewing my drivers license. So now its back there again and will only get worse and never will get better again. What fun.

sorry to hear that Dave.. I often wonder what I would do in worst-case scenarios (guess a lot of us do).. I would find it really hard not being able to read, share thoughts using a visual medium. To be honest, that would freak me out. I hope you find a way to still get what you need, what you want, despite it all.

DaveInVA

DaveInVA Avatar

Location: In a hovel in effluent Damnville, VA
Gender: Male

Posted: Jul 29, 2016 - 9:03am
black321 wrote: Sorry to hear that, but try to enjoy what you still have. Its all I can do. I can't make out detail in peoples faces anymore in normal lighting.

black321

black321 Avatar

Location: An earth without maps
Gender: Male

Posted: Jul 29, 2016 - 8:52am

DaveInVA wrote:

Sorry to hear that, but try to enjoy what you still have.

DaveInVA

DaveInVA Avatar

Location: In a hovel in effluent Damnville, VA
Gender: Male

Posted: Jul 29, 2016 - 8:47am

DaveInVA

DaveInVA Avatar

Location: In a hovel in effluent Damnville, VA
Gender: Male

Posted: Jun 23, 2016 - 3:09pm

A couple weeks ago I started seeing my eyesight getting worse in my right eye in addition to the glare problem that was only in my right eye after my cataract surgery. I am also seeing a pulsating yellow spot right in the center of vision with that eye along with distortions in the center. So the Doc that did the surgery sent me to a specialist from Duke today. Turns out I have higher than normal pressure in that eye but what is causing it is a cyst growing on my retina right in the middle of vision. Thats causing the pulsating yellow spit. Next I have to get a dye scan to find out how bad the cyst is. He said some can cause bad leaks. He also said it will never get better than what it is now as the cyst has already caused permanent damage.I may also have to be on a med to keep it from growing but he doesn't like using it as it has bad side effects. Well I got a couple of decent weeks vision out of that eye after surgery anyways.

DaveInVA

DaveInVA Avatar

Location: In a hovel in effluent Damnville, VA
Gender: Male

Posted: May 5, 2016 - 2:32pm
Just got my prescription bifocals. I can see 20/20 using both eyes with them, 20/40 without the glasses. Now just have to get used to the damn things. Keeps making me think there is something stuck in my eyes because of the abruptness between the 2 halves.

kurtster

kurtster Avatar

Location: drifting
Gender: Male

Posted: Apr 26, 2016 - 12:31pm

DaveInVA wrote:

Just got back from the eye doc. My "official" new eyesight is 20/40 both eyes but I could read some of of the 20/20 line using both eyes. He deemed my eyes stable enough to give me a glasses prescription. Turns out Medicare pays 80% of the first pair of glasses after cataract surgery and the cheapie online glasses place I was recommended by friends doesn't deal with Medicare so I am having my first pair made by the eye doc's lab. They will just be crappy frames with lined bifocals as thats all Medicare will pay 80% of. They wanted $104 extra for progressive bifocals and Medicare wont pay any of that.

And he wants to wait 4 months before using the Yag laser to remove the capsule wrinkle in my right eye that is causing a diagonal white line with headlights, street lamps etc. He is still hoping it will clear up on its own.

That's pretty good news. 20/40 is the minimum acuity to avoid a restriction on your driver's license.

Do not order glasses online, especially anything multi focal. You can get single vision lenses and get lucky, but multi focals need very accurate measurements. They say you can do it yourself in a mirror, right ... I've seen the results, just sayin'.

Then try getting someone to adjust them for you, especially when you say that you bought them on line. We get $20 for adjusting Warby's and that's friendly. I see so many frames that do not fit the person who bought them. They don't know what to look for and what to avoid.

DaveInVA

DaveInVA Avatar

Location: In a hovel in effluent Damnville, VA
Gender: Male

Posted: Apr 26, 2016 - 11:29am

DaveInVA

DaveInVA Avatar

Location: In a hovel in effluent Damnville, VA
Gender: Male

Posted: Apr 13, 2016 - 2:14pm

kurtster wrote:

It may very well do that. The implants are folded up prior to insertion and opened once inside. Ideally there are no creases in the lens such as what you may have. I doubt very seriously that the brain would overlook such a prominent item like the crease or fold. It sounds like it is resolving itself. Hopefully that is what is going on.

The crease is in the "capsule" around the new lens. He had more trouble positioning the lens in this eye than the other. That is likely what caused it. If its not gone by 4/26 they are setting me up to get it zapped with a YAG laswer

kurtster

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Location: drifting
Gender: Male

Posted: Apr 13, 2016 - 2:10pm

DaveInVA wrote:

The line in my right eye when looking at headlights, streetlights etc seems to be slowly getting better. Either that my brain is trying to tune it out. Hopefully it will heal on its own before my next appointment.

DaveInVA

DaveInVA Avatar

Location: In a hovel in effluent Damnville, VA
Gender: Male

Posted: Apr 13, 2016 - 1:57pm
The line in my right eye when looking at headlights, streetlights etc seems to be slowly getting better. Either that my brain is trying to tune it out. Hopefully it will heal on its own before my next appointment.

buzz

Location: up the boohai

Posted: Apr 13, 2016 - 1:54pm
haresfur wrote: Hey if I were God, I'd be evolving new things into people all the time. You would probably have a finger growing out of your upper lip so you could pick your nose. Maybe that's why I didn't get the job. make it a long one. i want to be able to scratch the underside of my brain.

haresfur

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Location: The Golden Triangle
Gender: Male

Posted: Apr 13, 2016 - 1:24pm
oldviolin wrote: buzz wrote: i thought the science was settled. Oh ye of little faith... Hey if I were God, I'd be evolving new things into people all the time. You would probably have a finger growing out of your upper lip so you could pick your nose. Maybe that's why I didn't get the job.

oldviolin

oldviolin Avatar

Location: esse quam videri
Gender: Male

Posted: Apr 13, 2016 - 7:39am
buzz wrote: i thought the science was settled. Oh ye of little faith...

buzz

Location: up the boohai

Posted: Apr 13, 2016 - 7:35am

meower wrote:

Not sure where else to post this. It is groundbreaking.

https://news.virginia.edu/illimitable/discovery/theyll-have-rewrite-textbooks

It’s a stunning discovery that overturns decades of textbook teaching: researchers at the School of Medicine have determined that the brain is directly connected to the immune system by vessels previously thought not to exist. “I really did not believe there were structures in the body that we were not aware of. I thought the body was mapped,” said Jonathan Kipnis, a professor in the Department of Neuroscience and director of the University’s Center for Brain Immunology and Glia. How these vessels could have escaped detection when the lymphatic system has been so thoroughly mapped throughout the body is surprising on its own. But the true significance of the discovery lies in its ramifications for the study and treatment of neurological diseases ranging from autism to Alzheimer’s disease to multiple sclerosis. Kipnis said researchers no longer need to ask questions such as, “How do we study the immune response of the brain?” or “Why do multiple sclerosis patients have immune system attacks?” “Now we can approach this mechanistically — because the brain is like every other tissue connected to the peripheral immune system through meningeal lymphatic vessels,” Kipnis said. “We believe that for every neurological disease that has an immune component to it, these vessels may play a major role.” Kevin Lee, who chairs the Department of Neuroscience, recalled his reaction the first time researchers in Kipnis’ lab shared their basic result with him.

i thought the science was settled.

black321

black321 Avatar

Location: An earth without maps
Gender: Male

Posted: Apr 13, 2016 - 7:35am

meower wrote:

Not sure where else to post this. It is groundbreaking.

https://news.virginia.edu/illimitable/discovery/theyll-have-rewrite-textbooks

this seems encouraging...seems to provide an explanation from some of the articles I've read that show evidence of how reducing inflammation is helpful in reducing the chances of diseases like Alzheimers. But also, how little we yet know.

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